I finally heard back about the genetic test- NUDT15- today.
Good news and bad news.
Good news: no genetic mutation here
Bad news: no genetic mutation here
Why is it the SAME? Because I wanted there to be a mutation so 1. that would explain his intolerance to current 6MP and MTX dosage (aka liver enzymes skyrocketing) and 2. he would move forward with a lower dosage. However, I suppose no mutation is also a good thing.
With a negative result, I now have to dive deeper into research about how his homozygous 1298 MTHFR mutation is at work here. I think I may just approach one of his nine oncologists... the one who believes MTHFR is a thing. Too bad if primary ONC doesn't like that.
I would appreciate prayer over this situation. I need wisdom, clarity, focus. I need the Holy Spirit to guide me to the information that will help Dempsey (and hopefully other kiddos in the future). I need peace about my netxt steps. As always, pray as you feel led.
Also, tangible needs this week are:
Baking Soda for detox baths- wherever you can find it the cheapest
Funds for supplements: www.PayPal.me/coralkenagy
See chart below for supplement costs.
Interesting. At least I can keep praying, even if I don't much understand what I just read.
ReplyDelete