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Saturday, September 17, 2016

A Day in the Life of Dempsey

Wake up
Technology while the family sleeps
NEOLIFEShake (various flavor combinations) w/ vitamins added

  • almond milk
  • protein powder
  • 4 Carotenoid Complex
  • 4 Tre en en
  • 1 Lecithin
  • 1 Vitamin E
  • 1 Vitamin A
  • 1-2 Acidophilus Plus
Technology with Sawyer
School work
Free play
  • costumes
  • coloring
  • Legos
  • outside
  • running
  • Jeeping
  • hockey
  • soccer
  • board games
  • fort building
Making scrambled eggs himself (although we often have to finish the in-pan stirring)
Snacking

  • organic fruit
  • smoothies
  • organic trail mix
  • organic Simply Clusters (Costco)
  • organic chips (like 5 chips max)
TV episode with lunch
  • Leap Frog
  • Magic Schoolbus
  • Martha Speaks
  • Handy Manny
  • Electric Company
  • something from JellyTelly
Cleaning up the living room/ bedroom/ playroom/ backyard
Helping to make a batch of smoothie
  • Aloe Vera Plus
  • bone broth (free range, no antibiotics chicken)
  • organic spinach/ chard/ kale
  • greek yogurt
  • organic cucumber
  • organic banana
  • NEOLIFE protein powder (typically Berries 'n Cream)
  • organic frozen fruit (berries/ tropical fruit)
Dinner (whole foods, fully cooked animal protein, etc)
Outside play (aka PE) with Daddy
  • bike/triking
  • running
  • hockey
  • Jeeping
  • soccer
Detox bath (or a shower)
  • epsom salt
  • baking soda
  • rosemary essential oil
  • juniper berry essential oil
  • 30 min (bath)
  • Green (from NEOLIFE) as his soapies
Teeth brushing (doTERRA's OnGuard toothpaste) & mouth wash
  • legs/ arms rubbed with Bend Soap's goat milk lotion with frankincense and Hawaiian Sandalwood essential oils
  • abdomen rubbed with fractionated coconut oil with Detoxification Blend and Digestive Blend essential oils (helps his body/ liver detox and keep away nausea)
  • feet oiled with roller bottle blends I put together (protects/ supports his body in MANY ways)
Night time TV episode (hopefully with some parental snuggles)
  • Friends and Heros
  • What's in the Bible?
  • other JellyTelly shows
Mercaptopurine (chemotherapy pill) in a Jell-O
More teeth brushing to make sure there is no chemo residue
Daddy does bedside routine of tucking in, praying, turning on stars, and "good night" kisses
Sleep on his BioMat (which helps his body detox further)

Friday, September 16, 2016

Coming Up

This morning Gram visits! We are all so excited. Me especially because that means I get to escape, I mean regrettably leave, the house these afternoon. *wink, wink* Jake and Sawyer have plans to attend the Angel game tonight with a dear friend, Jeremiah. There will be In n Out, I assume, and a lot of fun. Sawyer will come home exhausted and happy. Jake will come home fulfilled by bonding time with Sawyer, friend time with Jeremiah, and just being not at home for a few hours. Dempsey is elated at the thought of having Gram all to himself. I believe the beach with a dear friend awaits me. I will be back in plenty of time to handle bath, oils, pill, and bed time.

Tomorrow Sawyer does not have a soccer game. I also completely spaced on getting him to his ONE practice this Monday... hey, it was a HARD journey last week that spilled over into this one.

*UPDATE* This Sunday Sawyer and I will be moving to the 5pm service on Sundays. My parents' church location is changing and the time is no longer compatible with our attending the 11am service. Since my folks watch Dempsey, we have to adjust for them. Change will be challenging and we'll manage. Plus, it's like the most laid back service of the four. Sweet. So, if you think we've stopped attending WACC... we haven't. You can find us at the 5pm service, making room for newbies or people who plan their church-going around football. *wink, wink*
Sunday is also what? BURGER DAY!!

MONDAY Dempsey has a lab draw at 8am to make sure his counts are good enough to go inpatient on Tuesday. He also has an Echo scheduled for 9am. This is a short appointment and I believe it's routine... making sure that his heart is surviving the mass amounts of drugs being pumped into him. I'm not worried about his heart, or his body, because I know the quality and amount of NEOLIFE nutrients Dempsey is ingesting EVERY SINGLE DAY. Between the carotenoids, vitamin E, and protein he's getting, I know his heart is protected. However, never hurts to check!
Please pray:
That Monday's appointments go well
For travel mercies
For competent nurses and doctors
For good levels (labs)
For excellent (min-blowing) results from his echo
For calm nerves
That Dempsey shines the Light so bright wherever he goes
For miraculous healing and miracles
As you feel led

Sawyer has soccer practice Monday afternoon. Pray for a good, safe practice and that I don't forget again.

TUESDAY-FRIDAY Dempsey is scheduled to go inpatient for his FOURTH and final round of high-dose methatrexate. This works the same as all the other rounds: 6 hrs fluid push, 24 hrs infusion of HD MTX, 48 hrs of flushing, charting his urine output, and four lab draws to make sure the HD MTX gets out of his body so we can go home as scheduled on Friday. Praise God there is no lumbar puncture this time so we shouldn't have the blood sugar issue we had last time.
Please pray:
For miraculous healing and miracles
For a pleasant time at CHOC again
That we can be salt and light to this hospital, its staff, and it's patients (families)
That we will cultivate the seeds of relationships we've been planting since April
That we will be sensitive to Divine appointments and the Spirit's leading
That Dempsey will be brave and his fun-loving self
For perfect results, always
Protection over every part of Dempsey's little growing body
For calm nerves and peace
Against negative side effects
That we can sense God's presence and see His fingerprints on this journey
That we continue to be postitive examples in all areas of life
As you feel led

FRIDAY Sawyer is set to start his Clinic Classes at BIOLA with their PSP. We are so excited about this new journey, despite the added stressful overlay of Dempsey's cancer journey. We are greatful for God's protection and provision regarding our homeschooling path for this year. We were all set to go with BIOLA before our previous homeschool program was destroyed by a corporate-like takeover. God is so good! We are happy that quite a few of our friends are joining us at BIOLA this year, too. Cannot wait to see who God has waiting for me in this new endeavor. Exciting.

Prayer requests:
Pray for miraculous healing
Pray against negative side effects
Pray for miracles in general
Pray for miraculous healing of ALL kids on the 5th floor (or at CHOC in general)
Pray protection over every part of Dempsey's body
Pray for continued "health" and overall wellness for Dempsey during this journey
Pray for stamina/ strength for me and Jake
Pray protection over Sawyer and his brother-heart
Pray for strength and resources for our support network- God's economy is beyond our comprehension
Pray for a smooth 4th and final round of HD MTX
Pray that Dempsey will continue to boggle medical minds
Pray that God uses us as salt and light in such a dark and hopeless place
Pray that we can advance the Gospel and bring the Hope to CHOC (and everyone who is touched by Dempsey's journey)
Pray that we will always be willing to share what we are doing with others so they can have a journey like ours
Pray God does BIG things with Dempsey's journey
Pray that we don't waste one iota of what's happening
Pray that we always have eyes to see HIS orchestration and an obedient spirit to follow HIS leading
Pray as you feel led


Wednesday, September 14, 2016

Round 3: Photos

Day 1 of Round 3

On his way for his lumber puncture.
I've lost count of how many he has had. :-(

Sawyer and I go to Turtle Talk while Dempsey is in his procedure.

While Dempsey sleeps off the anesthesia, Sawyer is interviewed by Brian at Seacrest Studios.
Sawyer may or may not have told Brian he needs to take NEOLIFEShakes for breakfast.
Currently Brian doesn't eat breakfast. ;-)

Sweet boy sleeps off the anesthesia.
It takes 3 hours.

First food in 20 hours!
Daddy's homemade pizza.

Playroom fun in the evening.


We love the playroom volunteers.
Meet Megan and Vanessa.

Day 2 of Round 3.
Connect 4 with Princess Jasmine in the playroom.

Demps gets ALL the ladies.

A little bit of air hockey with Daddy.
John "helps". John is from Ireland and has a heart so big it can't be contained.

Yummy watermelon.
He loves his whole foods.

He napped HARD.
Still trying to recover from such low blood sugar the day before because of no food for 20 hours.

Sawyer saying good-bye for the day/night.

Awake... still not much of an appetite.

More Turtle Talk. Crush recognizes him and calls him by name.

Detox bathing with his smoothie/ vitamins and a little Batman on the ipad.

Day 3 Round 3.
Sawyer's back! We love when Sawyer is with us.

Y'all the story behind this photo is awesome!
This day was Superhero Thursday. Jake had brilliantly packed Dempsey's Spider-Man cape and mask (see Sawyer below). A nurse we've never met, stopped by our room at the end of her shift. She said she purchased this costume at Costco just for the cape for the day. She told me that she had told her coworkers that she was going to donate it to Child Life. They told her "No... you HAVE to give it to Dempsey! He loves superheroes." How awesome is that?! The nurses know and love our boy so much. I was speechless. Such loving selflessness that absolutely made this boy's day.

Sawyer as Super-Spider-man.

The boys sported their costumes to Turtle Talk. Crush was confused and asked "Is that Deep Sea Dempsey behind that mask?" Dempsey raised the mask and answered, "Yeah, it's meeee." Precious.

Dempsey is working to string up the dozens of Beads of Courage he's collected.

Please consider donating money or talent to Beads of Courage.
It's a beautiful organization that uses beads to mark the journey these kiddos are on.


Each one of those white beads symbolizes a dose of chemotherapy Dempsey has endured. This is just one of FOUR necklaces full of beads.

Candyland with the boy.

Aaaannnndddd more Turtle Talk.
See that beautiful little toe head in the background? That's Ryder. He's 3.
He caught a virus our of the country, ended up with encephalitis. He is recovering pretty well but still needs prayer while his nervous system rights itself.

This is Nurse Julia. She and I got to talking and she forgot to have Dempsey help her with his vials.
So, she went and got some supplies and water so that he could do something. Awesome.

Conked out. He is so beautiful.

Day 4 Round 3. Yep, you guessed it... more Turtle Talk.
We LOVE us some Crush.

Granny and Granddad brought Sawyer to CHOC and played on the courtyard for a bit.
Dempsey LOVES being outside to play and soak up some Vitamin D.
Look at that energy!

Sawyer conquered CHOC-o Bear.

Air hockey with Granddad in the playroom.

Dempsey designed a picture frame. Complete with paint and foam stickers.
Of course he chose RED paint.

Brother shenanigans. Bunny ears and boisterous melodies.

Even more Turtle Talk.

Brothers. Quesadillas. A movie.
There had been a headache, some nausea, and even a little vomit (not much at all).
I blame the screwed up blood sugar cycle from Day 1... remember, no food for 20 hours!
Daddy gave him Aloe Vera Plus and rubbed some of the Digestive Blend essential oil on his tummy.
Good as new.

All packed up and headed HOME.
Praising God for another round done and rather smoothly too.

Monday, September 12, 2016

Quick Catch Up

I am working on a more detailed post but please enjoy these bullet points for now.


  • Dempsey's 3rd round of high-dose methatrexate went well
  • Dempsey went without food for 20 hrs because he had a lumbar puncture ("procedure") and then slept off anesthesia
  • Dempsey had blood sugar issues from the above which, I believe, led to some nausea and a headache Thursday/ Friday
  • Dempsey was blessed with a brand new Batman costume, complete with TWO Batarangs, from a nurse. When she told other nurses she was going to donate it they all told her "No! You HAVE to give it to Dempsey... he loves superheroes."
  • Lots of Turtle Talk visits
  • A trip to the Seacrest Studios
  • Drank lots of Aloe Vera Plus
  • Lots of laughs and fun with Ella (#BraveBoyle)
  • New friends for Mom
  • Conversations about nutrition and cancer
  • Love our nurses
  • God is faithful and good!!
  • I had to BLOW DRY Dempsey's hair after bath tonight!!


More to come...

Please keep those prayers coming!!