Dempsey had more labs today.
This afternoon I received a call from CHOC OPI reminding us of his procedure at 10:30am with an arrival time of 8:30am. He will be NPO (cannot eat after midnight). He will be given anesthesia- again. He will be infused for hours on top of that.
IT IS TOO MUCH!! WHY MUST THEY COMBINE SO MUCH AT ONCE? His poor tiny body. Praising God that he is strong and resilient. Your prayers are working. They are helping our boy THRIVE through this ridiculous journey.
So, here's the schedule you can pray over:
Tuesday- lumbar puncture (needle in spine) and infusion (hours-long day)
Wednesday- infusions
Thursday- infusions
Friday- infusions
I believe we repeat this schedule next week as well. Happy Thanksgiving...
Currenlty, this mama feel like the anchor of a cruise liner. Suffocating under the water, feeling pressed by the pressure of that water, and being drug across the ocean floor- churning up all kinds of stuff and only to have it washed away to make room for more stuff. So heavy. The weight of this journey is... [insert grossly exaggerated adjective to describe unpleasant].
Dempsey is "fine". He has no negative side effects. Well, hair loss but that's not an inconvenience or anything. He has these little pimple-like bumps on his left cheek under his eye (other cancer moms call it "chemo acne") but that is even going away thanks to NEOLIFE/ Nutriance's Aloe Vera Gel and doTERRA's Anti-Aging Blend (Immortelle). Anti-aging... that sounds funny for a 5yr old. But it has AWESOME oils in it: frankincense, helichrysum, hawaiian sandalwood, lavender, myrrh and rose.
Dempsey:
still runs
still laughs
still rough houses
still argues
still uses manners
still climbs
still kicks soccer balls
still plays hockey in the street
still trikes
still plays monkey in the middle with Granddad
still eats better than the rest of us
still drinks his mass amounts of whole food supplements #dempseystrong
still watches TV
still plays wii
still colors
still loves the color RED
still watches his sugar and salt
still helps when asked
still pouts when he has to water the plants
still enjoys his detox baths
still loves watching JellyTelly shows
still wants to make scrambled eggs
still wants to learn new things
still wants to do new things
still likes to snuggle
still loves his blanket (that Auntie Tabitha made for Sawyer before he was born)
still loves his cheetah named Puppy
still loves playdates with friends
still misses "normalcy"
still asks when his port will come out (currently 1,020 days)
still loves Legos
still drinks a ton of water
still has chemotions
still sleeps well
still prays for others
still opens doors for people
still loves ketchup
still thinks of his brother in generous ways (such a sweet hearted boy)
still has hard days
But most importantly Dempsey... is still Dempsey.
We have much to be thankful for... now, if I could just clear away the darkness so I can SEE these things instead of just know they're there. Maybe I just need a few more days.
Love it. Love you. I'll text you to see what day works for that Israeli dinner delivery.
ReplyDelete